I feel like hanging out flags and setting off some fireworks. Today, after 2 months of fighting with them, Talk Talk, the suppliers of my broadband service, have agreed that the problems we’ve been having, isn’t caused by anything in our home. That is, despite my replacing all the internal wiring, the router, and the telephones on their instructions. When their engineer arrived at the house within a minute, he located the issue as outside the house. All they have to do now is fix it and then I’m going to try and make them pay for the equipment that I didn’t need to buy, and all the stress and upheaval that they caused in my life. I know that that will be an even bigger battle, but at least the first step has been taken and I feel great about it. There really isn’t anything worse than feeling like you are being treated like both an idiot and a liar, when you know perfectly well, that you are neither.
Even if you are fit and healthy, the way some of these companies treat their customers is abominable. On the odd occasion, that I got past the person who answered my call, and actually spoke to a manager, I very much got the feeling that I was being patted on the head like a two-year-old. I told them on several occasions that I was disabled, housebound and needed both my phone and the internet as they are my only connection to the outside world, they still didn’t seem to take it as any more serious than an inconvenience. The problem with these huge companies is they don’t care about those who are making them money, we are nothing but a number and if they lose you, they will replace you with someone else. I haven’t told them yet, but the instance that this is all fixed to my satisfaction, I will be leaving, as soon as I can. I just wish that there was some way of making them feel the pain that they have been causing me, but that is impossible. I quite honestly believe that they have been behind much of the recent downturn in my health. I have been left several times sitting here in tears and with stress levels off the scale, while they continue on happily with their own little lives.
To me, this is yet another hole in the disability rights. Every company has to now supply access to their buildings for the disabled, they also have to employ a certain number of disabled people, but once past those physical situations, there is nothing that says we have the right to service appropriate to our conditions. As someone who is housebound, it goes without saying that my telephone and broadband service are essential. Without them, I have no contact with the outside world, there for, it is essential to my health. Right now, both my gas and electricity supply is protected, even if I didn’t pay the bill, they can’t cut the supply. My telephone company can do whatever it wants, how is that right?
Recently, here in the UK, there has been a drive for staff to be trained to be able to supply service for people with dementia. I don’t have dementia, but I can get just as confused and just as agitated as someone who does, due to the brain damage that I have. That drive is focused on shop and bank staff, there is nothing similar when it comes to their call centers, which these days is most people’s point of contact. I wouldn’t have the slightest qualm in having it written on my account that I have with every company I have dealings with, stating that I have a disability that needs specialist help on the phone. I have said many times before that I have huge issues making phone calls, but it came down to my having to make the calls to Talk Talk for several reasons and despite my telling them, over and over that I have a disability, on some occasions, I have even said it affects my brain, but nothing changed, nothing happened until I broke down in tears. It is so wrong that we are treated this way. Businesses have to change, they have to, as if they haven’t noticed, there is a huge aging population out there, many of whom will in time need specialist attention when dealing with them. The more elderly there are, the more people with chronic illnesses there will be, it’s a simple fact. If companies want our money, they need to shape up.
Sorry for going off on a rant, but as you can probably tell, this whole thing has really got to me, and it’s not even over. Unfortunately, you have to have your life turned upside down before you start to see the wrong in the world. Even worse than that, once you can, you’re not in any condition to put up the fight to get these things changed. Sometimes, I think the outside world knows that full well, in fact, they don’t just know it, they bank on it. We are the forgotten, the ignored and the put upon, simply for those reasons, and like everything else in chronic illness, it simply isn’t fair.
Please read my blog from 2 years ago today – 23/07/2014 – Pulling things back together
Calm and ready to go, well that is the story I am telling myself today, calm being the most important part of it all. After yesterday’s free fall into confusion, panic, isolation, agitation and pure hell, today has to be a better one and the best way I know of achieving that is to stay calm, to hold on to the normality of my day and just work my way through from now to bed time without letting go of total…..