Modern chemisty

It appears that I’m not allowed a simple day or one where I could sit back for more than a few minutes and say I’m OK. I honestly don’t remember feeling this ill for this long ever before. It is now almost the end of week four and to be honest, I just keep feeling weaker and weaker, but on the upside, I think we might have an answer. On Thursday morning, I was sat here when the phone rang. The display told me that it was my doctor calling, something I really didn’t expect. The blood test results had already been called into him, as there is a quite serious problem. Apparently, my potassium leaves are really low, so low that they could be behind the twitches and tremors that I am living with right now. He also said that it is without a doubt the fault of the Frusemide, but clearly, I need to keep taking it, so I have yet another prescription with the chemist, and yet another tablet for me to take. I’m not totally convinced it will be the answer as the twitches and tremors started long before I started taking the high dose Frusemide, but I will try anything.

Speaking of the chemist, we actually had a delivery on Wednesday which Adam unpacked when he got home. Luckily, I was sat in the kitchen when he was doing so. I knew that the enemas were making up the bulk of the bag and there should be one box of tablets for dissolving my gallstones. Adam took out two very different boxes and was about to put one of each into my pill pots when I spoke up and stopped him. I knew there should only be one box and I was right, one of the boxes wasn’t for me, it had someone else’s name on it. It was clear what had happened, but mistake or not, it could have been one that made me ill, and the person who was waiting for it, even iller. I know that mistakes happen, but to me, this isn’t just a mistake, it’s dangerous. Adam called them the next morning and they have now collected them, but I still feel uneasy about the who thing. It has taught us a big lesson though, every medication that arrives here has to be double checked, not just put with the rest on pure trust because you never know what it might be.

When the continence nurse called yesterday afternoon, I thought that it would be a quick 10 minutes of form filling, another 10 of the standard questions, followed with a scan of my bladder, then a discussion about the types of towels and what would be best for me. Thirty to forty minutes top. Oh, how wrong I was. She arrived here at 3 pm, we didn’t get around to the scan until 4:10 and half way through that, the doorbell rang, Asda was here to deliver my shopping. With incredible time, just as I had dressed again he appeared with the first two crates. I had no other choice than to position myself sitting in my wheelchair half in the doorway of the living room, so I could see and talk to both the delivery man and the nurse, depending on who needed my attention. I found myself discussing the quantities of fluid that different pads held, the styles of each towel and what you wore with them, in between the drivers coming and going. It was totally surreal. Luckily, he was finished and gone before we got the one bit of her entire visit that I couldn’t quite believe.

From all her questions, she concluded that I would need one towel for the day time, a slim-line version of the ones that I have, which I will wear with a pair of mesh knickers. The hope is that they will stay in place, without the painful rucks and folds that happen with the one’s I have now because I jig and twist around so much. I will also get one pad for the night time, similar to what I already have. I questioned her about quantities simply as I was sure that occasionally I will wet one and need more than one for her allocated time slots. Her answer astounded me, apparently, you’re meant to keep wearing the same one. The whole idea of not changing the pad, seem more than wrong. Somewhat unbelievably, she said that it was better for my skin not to change it, as it held the moisture away and if you keep changing them, it dries your skin out. I know that this might be the way they think of it, but not me. The whole idea that I will be able to wake up during the night to find that my pad is filled with liquid, then simply go back to sleep, just doesn’t work for me.

This morning when I woke to find my pad dry, I realised I had the perfect opportunity to test her theory. It held with ease an entire mug of liquid but even after letting it sit for half an hour, there was still a slight moisture there to my touch, not wet as I remember babies nappies to be, but it wasn’t dry either. I suspect that it may well work just as she said it will, but the whole idea of sleeping with a full potty attached to me, even if it is none spill, just doesn’t settle my mind. When I told Adam what she had said, he too cringed and said no way. I guess I have found yet another one of those things that the medical world believe and the rest of the world, simply quietly says no way. We might just have to buy the odd pack of towels and possibly some moisturising cream for my skin, as the other way, is just not going to happen.

 

Please read my blog from 2 years ago today – 02/07/2014 – The path to the future

Today is a tired day, a day where sleep is had been in my mind from the second I woke up, which considering I went to bed an hour early isn’t good news. I am still slipping, all I want is the time to sleep and the time to just disappear. Today I have to have my shower, regardless of how I feel as tomorrow the MS Support Worker is going to be here. When the letter arrived a couple of weeks ago I thought…..

 

 

11 thoughts on “Modern chemisty

  1. My father and grandfather were both pharmacists (chemists) and I worked in my Dad’s store. I remember watching how carefully they checked and double checked what was dispensed with what was on the prescription. Still, mistakes did happen. Once I got (not from my Dad), a bottle that contained twice the amount of antidepressant that was was to have. Now that could have been a very dangerous mistake in the wrong hands. I am very hands on when it comes to my medicines so figured it out right away and took the surplus back (they can’t reuse it but have to account for it). If someone were truly depressed when they received that, I don’t want to think of what could have happened. I am glad you were able to resolve it as well. A friend must use the pads and I have done respite care for her often. She never goes through the night with just one pad, even when they say they are ultra-absorbent. I am sorry you are going through all this!

    Liked by 1 person

    • On the whole, the problem lies with ourselves, most of us totally trust our chemists. Part of the reason I wrote about it was to place a warning note in the minds of others. You learnt as a child to double check, I was lucky and just spotted it, if I hadn’t been there at that second, I would have landed up taking it later. We all need to check.

      As for the pads, well I honestly don’t think I will be using one pad, whatever they say. It is just so wrong in my mind, that I quite simply couldn’t.

      Take care (((Hugs)))

      Liked by 1 person

  2. Trust your instincts and lay in a supply if extra pads. No way are you meant to sit in filthy dampness as a way to keep “moisturized”. That whole comment just sounds suspiciously lazy to me.

    And, just look at babies and diaper rash. If that were true, diaper rash from being in wet nappies would have long ended.

    Liked by 1 person

  3. ALWAYS check behind every chemist, Doctor, nurse, and worker. If something sounds strange to you, likely it is. Every human is fallible. KNOW your medication, products, disease process. Education is your best protection. YOU are responsible for your care. Please do not allow a wet towel to sit against your skin. Change them if you know they are wet. Skin breakdown is very hard to prevent, besides wet towels become malodorous. *Two, you are a truly beautiful soul. Thank you for the mention, for reaching out to others living with chronic illness, and for persevering. May the Almighty bless you.

    Liked by 1 person

    • I wrote the part about the chemist as a warning to others. The iller you get, the more you just accept what is there as correct. Adam wasn’t in the best mood and simply did the same thing, accept. We all have to check whatever is said or given to us.

      I have no intention of sleep with a wet towel, although I can see a lot of people doing it for several reasons. I can see with ease how when you have little money and even if you feel you should change it, not doing so, as you are only prescribed the one. I too see it as a false economy, but a dangerous one. Part of the cost savings or what?

      Take care (((Hugs)))

      Liked by 1 person

  4. Discussing incontinance whilst collecting Tesco deliver going on! Insensitive or what! Sorry to hear all this. Disgusting and as for sleep wear? Thank you for sharing..

    Like

    • I agree. Wet all night just doesn’t sound healthy. Now if you don’t wake up in the night to change,,well thats a different story. And can’t be helped. But wet for the sake of skin moiture???I don’t think so. 😦

      Liked by 1 person

  5. Pingback: Yesterday, or even further back? | Two Rooms Plus Utilities

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