Teressa phoned me last night. My first thoughts were clearly that she had spoken to her father, but to do that, I was sure that she would have gone to see him. After all, what I want her to talk to him about, isn’t exactly the sort of conversation you have over the phone. To do so would open up the possibility, that between speaking and actually having the forms in front of him to sign the deeds over, that he might just change his mind. No that is a conversation that needs to be had face to face. She was calling for two reasons, one to annoy me, and the other to surprise me. Firstly, yesterday was my birthday, I think birthdays are the most stupid thing that humans ever created. The whole idea, that we celebrate a person once a year, just doesn’t sit right with me. We should celebrate those we love all the time. If we see something we think they would like as a gift, then give it to them, whatever the date is. Why do it, just once a year? It has taken me years to get this through to Adam and everyone else, and everyone, other than my daughter, does just as I ask, ignore, 100% my birthday. The first words out of her mouth were “Happy Birthday Mum.” On the good side, she has stopped wasting money on cards.
The second thing she said was that she is coming up to Glasgow next week to spend a couple of days with me. She couldn’t say exactly how many days, as, her boss hasn’t confirmed the number yet, it could be two or three. She is about to leave Sega, who she has worked for, for years, firstly in San Fransisco and then in London, for a dream job with Microsoft. She will still be based here in the UK, but will be jetting all over Europe in charge of teams in several different countries. This short break, will probably, be her only opportunity to visit for a while, as her main holiday this year is to be spent in Ohio, visiting her husband’s family. Somewhere they were supposed to be last December, but all fell through, thanks to a mistake in timings, John made with applying for his new residence visa. Right now, it looks as though if she didn’t come here next week, it might well be next Christmas, if not longer, before I could even see her again. So I have something to look forward to.
Since her father snuck her out of the country when she was just 12, to live in New Zealand, and I eventually tracked them down, we have had a long distance relationship. We did have one glorious period of 6 months together when she flew home, to spent six months with me when Adam and I got married, before making the desition for work reasons, as there was none in the UK, to return to New Zealand. When she did get back, she phoned me straight away, her dad had returned to the UK in her absence and had said nothing. In the past 16 years, she has been married twice and lived on three different continents and has had a wonderful life. Everyone says that we are like two peas out of the same pod. We look alike, share the same sense of humor and frequently our words could have come from either mouth. We love the same TV programs and totally share our love of technology, especially PC’s. Our one big difference is this love of travel. I haven’t left the UK since I was 12, and I haven’t even left Scotland, for more than two days, in the last 20 years. I have never even owned a passport. I suppose her father had to have something to do with her, although apart from that, it’s hard to see what.
I guess it’s only natural, that as a mother, no matter what the medical world says, that I fear that she too will become ill at some point. It doesn’t matter how often they say that MS isn’t hereditary, I have this constant niggle in the back of my head. I probably wouldn’t be a mother if I didn’t. My family are plagued with autoimmune conditions. From Asthma that requires oxygen on hand 24/7, rheumatoid arthritis, and dozens of other minor conditions, plus a condition I have never been able to remember the name of, that my brother has. Apparently, there are only three people in Scotland with it. It attacks the kidneys and causes his lower body to become totally solid, his legs literary turn into wood, and yes, it is painful. If he is lucky he is just bedbound by fatigue, at other times he has is hospital bound, when it was at it’s worst. Yet again there is nothing they can do. Right now, he is in remission, but there isn’t one of us, who doesn’t have something. My grandmother died from some mysterious illness in the 1960’s, from the little I know, it sounds as though her life wasn’t dissimilar to mine. So yes, I worry about my daughter. So far, the only thing I know she has, just like me, she has what they now call HMS, I always knew it as double jointed.
I know that I am not a doctor, but when I look at my family and hear stories from others, about their’s, I can’t help but wonder if there is something in our genes, that open up the possibility, of the entire spectrum of autoimmune conditions. If you like, that we have a rogue gene that forms the firing pin, when other factors in our lives match up, they form the bullet. It is those other factors, that determine which particular form, we each develop. So no, none of the conditions aren’t hereditary, just the weakness that makes them possible. Coincidence is something that might explain a couple of people in the same family, but entire families, I believe, is stretching it too far. I guess though, like all parents, all I can do is sit back and just hope.
Please read my blog from 2 years ago today – 09/02/2014 – It’s written
It is now a habit for me and one I recommend everyone ill or not also fits into their day, time to just listen to your body. I started it as when this whole mess of illness began things came and went, often they were difficult……
That is a truely worrying thought. It’s good you journal and as time passes their is always hope research can discover improvements if not a ‘cure’. When I was young children participated in something called the ‘MS Readathon’ to help raise money for research.
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I spent too many years worrying that on top of my auto-immune condition, I would inherit my mother’s bipolarity. It seems not! Now I worry that my niece (I don’t have children) has inherited any number of predispositions. I already know that my nephew has inherited ADHD which I now realise is the undiagnosed problem with my estranged brother. And oy vey, I say again – families! Hope you have a splendid few days with your daughter. 😀
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In my view, there is an eternal problem with families, we share so much, yet nothing at all. 🙂
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I’ve been trying to catch up with all the posts i missed.Those of us who are housebound and sick;life is just; ONE MORE DAY OF THE SAME GAME, WHICH WE CAN NOT WIN. FROM LOSS OF BLADDER TO>> DNR’S AND FUNERAL ARRANGEMENTS.YOUR POSTS HAVE MADE ME SAD.I FEEL LIKE I’M LOSING MY BEST FRIEND. I JUST HAD A BIRTHDAY TOO. HATE THEM .BE KIND EVERY DAY MEANS A LOT MORE THAN A STUPID GIFT. I HOPE TERESA MAKES IT NEXT WEEK. YOUR POSTS, MADE ME REALIZE THAT TIME DOES NOT STOP; ONLY WE DO. YOU DESERVE SOMETHING TO LOOK FORWARD TO.MY OLDEST DAUGHTER ,LIVED IN LONDON, BUT FOR SAFETY SAKE(SINCE SHE’S PREGNANT), MOVED OUT OF THE CITY . I THINK YOU SAID THAT TERESA WANTED TO GET OUT OF THE CITY; BECAUSE LONDON IS NOT SAFE. AS MOTHERS; WORRY NEVER STOPS. YOU ARE RIGHT. WE PASS ILLNESS’S TO OUR KIDS.MY DAUGHTER WAS 12; WHEN STOMACH ULCERS AND RHUMETHOID ARTHRITIS WAS DIAGNOSED;JUST( LIKE ME) .LIKE YOU, I WORRY HER LIFE WILL BE LIKE MINE. SADLY,SHE’S NOW FIGHTING A BRAIN TUMOR. EVEN WHEN I CAN’T COMMENT/TYPE, I STILL THINK THINK ABOUT YOU EVERY DAY. YOU HAVE HAVE TOUCHED MY LIFE AND MANY OTHER LIVES.
I’m not going anywhere any time soon, just finding out what lies ahead and how I can prepare myself and Adam for it. We can’t hide from our futures and I believe, that the more we know, the easier it will be.
I’m glad your feeling a little better today and yes, I am looking forward to Teressa being here. It won’t be a long visit, but any time is better than none.
easier said than done but try not to live in what could be. Savour what you have today and the fact your daughter is coming to see you. Your memories are precious and shouldn’t be stolen by what ifs. I am glad Theresa is coming to visit you. I pictured her as a young child for some reason.
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