Minority to Majority

For one just hour look at the world upside down, a strange request possibly, let me explain, just for today don’t just do things think about what you are doing. Take all the things you find simple through out your day, those simple tasks like getting dressed making a cup of coffee, as you do each of these things try and do them with just one hand, or without bending a knee, or even something as small as not being able to bend your index figures, as though they are paralysed. Each thing you do, stop some part of you from working as normal, through every action you make continue to look at the problem that one tiny part of you, not doing what it should can make impossible the things you take for granted. If at the end of that hour you haven’t change your view of your world, well try it again but do it 100% not just sort off. If you do it from your heart, you will get a glimpse of the life that millions live daily.

I am sitting here looking at my little dish filled with the tablets that I have to swallow this morning, I’ve eaten my half slice of bread and drunk my first coffee of the day, so now it is the tablets. It’s silly how you do something daily and daily you dread doing it. All my life I have never like swallowing tablets and now when so many stick I have some of my medication in a syrup form, but too many meds still come in tablet form only. I just don’t see the logic when everything I take are meds for Chronic Illnesses, the types of condition that means you have to keep on for ever, taking them, yet the makers don’t think what it is like to keep swallowing their horse pills, or how when so many conditions have swallowing problems, that it might be a good idea to have a liquid form where possible. Companies of all sorts really are guilty of not actually employing joined up thinking, taking that step to look at what they make, the how and who may be the end user. Who was the bright spark who thought that making their tablets the size of a micro dot, in a plastic pop-out pack so close together that with poor dexterity you can not fail to pop out more than one? Economics, I know, the cost factor is the driving force but surly a little thought needs to be applied to life as well.

Even before I was diagnosed with MS and the worst of my problems developed, the insistence of the modern world to make things smaller and smaller each day, caused me problems. I don’t know how you get on with childproof caps but I hate them! I always have. I do see the point but I can honestly say that I haven’t had a child in any of my homes for over 20 yrs, I don’t know one single person with a child so surly I should have the option of normal caps on things. The companies who make bottle caps could easily sell packs of normal caps without bottles, they are standard sizes if you haven’t noticed, interchangeable between products and different sized containers, I could then throw away the child cap and replace with one I can manage with ease. They wouldn’t make a fortune, but I am sure it would more than just pay for itself. I am not talking about rocket science just simple options to make life simple. It may seem like a tiny unimportant problem, in my cupboards now are loads of containers that take not just time, but precious energy to navigate their entrance.

Once you have an illness like mine you start to see everything in a different way, nothing is about design first, cost has to be a factor but it is all to often about how I can use it and how much energy does something take. I know all to well now that the same problems I have had for the last few years, are also the problems that too many of our elderly face daily as well, we might not all become ill but we do all become old, regardless how we pretend for most of our lives, that it will never happen to us, we can’t escape it. It would be wonderful to think that all you had to do was write a letter to a company and point out their error and things would change, they wouldn’t, but with our rapidly aging population you would think that they would already be adapting to aid the majority, as that is what our world is facing right now, a society where the minority problems of the disabled are becoming the problems of the majority.

3 thoughts on “Minority to Majority

  1. As you have done so many times, you have discribed my life so very well. I have not nearly the number of meds that you deal with, but I know exactly what you are telling folks. Especially the pills in the blister packs. It is always the days that I hurt the worst that the little begger decides to fly out of the packaging to where abouts unkown. And as I have to pay for all of this on my own, I cannot afford to loose a pill.

    People cannot understand the little things of life that someone with a chronic disorder goes through. My flavor of fibromyalgia affects me not only through traditional pain, which is often fun enough, but with cold. Often numbing cold. I constantly have my hands balled together to keep them warm. It is 92 degrees F today here in western Pennyslvania, I am sweating in the house (80 or so in here) and my fingers are freezing. As are my legs. Somedays that is the case. Yesterday was in the mid 80s and I wore a long sleeved shirt and long pants so I would be healthy enough for a meeting I had with clients in the evening. I hurt like the dickens yesterday, but the pants and shirt enabled me to do the three hour meeting. Everyone else there was in more seasonal clothes. Yesterday, I could not think about that. I had to dress the way I did to be able to survive the day.

    I also could not shower yesterday. I did wash lightly and wash my hair, but I could not have water flowing on my body. It would have destroyed me yesterday. I have a very difficult time with fluids flowing on my body. Be it water or air, it is always a challenge. My folks put on the ceiling fans to cool the house. Those kill me. I have not swam or taken a conventional bath since I developed fibromyalgia. I cannot, it is not in the cards. I shower. There are times that I have to rest for up to an hour still after I have taken the shower to recover enough to dress. When I was bad, I would often just go back to bed it wore me out so much.

    And even dressing is a challenge, keeping clothes on the body. I have to wear loose fitting shirts and pants, nothing tight. Again, when things were bad in the first 2.5 years, it felt like someone was taking a wire brush to my entire body, under the skin, where it attaches to the muscle. Anything touching the skin was agony. So I would often be secluded in my room, alone, with nothing on. Of course, I was freezing as it was, even in the summer, so I would have to cover myself with a comforter, to warm up. Which would touch the skin and bring tears to the eyes from the pain. So I would get rid of the comforter until I was so cold I was shivering.

    I am lucky. I can manage things fairly well today. I know how to take care of the pain, the cold, the troubles with fluids flowing over my body. Sometimes, those tricks do not work and I am given a reminder of my blessing. My friend here is not so lucky. My malady will probably not kill me. MS does. As with so many chronic disorders, it does not do it quickly and today’s drugs do so much to make life more livable. And as MS is mainly an adult condition, would it not make sense to make the meds more accessible to those who will be taking them? Would it not make sense to use people like our friend to create appropriate packaging? Not just for MS drugs, but all sorts of drugs used by adults to treat adult conditions that hinder their physical dexterity? Not to much to ask for I think.

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  2. I recognise so much you have spoken about, having both Fibro and MS, I get a liberal combination of both. How to convince manufacturers that what they make isn’t exactly what is needed seems an impossible goal, they already get their money and will continue to, as we are caught in the trap of now being able to live without it, like most need air we need meds. As life is, I doubt I will see any changes happen but those who are following could have their lives made easier and with so little adaptation.

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