Rehab called round yesterday and as with all their visits I didn’t remember to ask all I should and tell them all I should, may-be I should just give them the links to my blogs and say, read you’ll get a fuller picture. No matter how hard you try to, it’s always hard to make the conversations go the way you want them too. I’m sure we all do this, run through in advance what you are going to say and how you are going to stress things, even on some points what we expect their answers to be, just to find that on the day none of it happens anything like that. I have never understood fully how medical people manage that one, as I always used to prepare for business meeting be it directors or staff, I usually got it pretty close to reality, put me in front of a Doctor or a Nurse and they continually curve ball me. I suspect it has to do with what they think is important, is usually the thing I think is least important. I did guess though that by the end of this meeting I would have agreed to have another department involved and I have.
I have tried everything that they have suggested for getting control of my bladder and bowel with mixed or no improvement, I was sure that the Rehab nurse was doing everything that she could think of but I even know I need more help. So once a small urine test is done, I am expecting a visit from the continence team, I had avoided it as my last dealings with them 10 yrs ago left me being expected to self catheter four time a day. Yes I can do it, but it isn’t a realistic operation to carry out day in day out. At that point I was working in the office with everyone else and having to have the catheters and all the stuff that goes with them, in my bag or draw, was a potentially embarrassing situation waiting to happen. When you are still at the stage of trying your hardest to appear as though nothing in life has changed and you are 110% fit to not just hold down a job, but you can still do it better than anyone else, well. I have stopped and started my use of them over the years and when using them, how often, To date this has worked well, I did go back up to the level I was supposed to be at when things started to go bad earlier this year, it didn’t cure anything and caused irritation that was more annoying than helpful, so back to my system. I am just going to have to wait and see what they will come up with this time but I’m not really looking forward to it as they don’t live in the real world a lot of the time I am sure, especially the real world with poor dexterity and a bad memory.
As my perching stool has seen much better days they are also going to replace that in the next week or so, I know anything will be an improvement to the one now in the corner of the kitchen units, but I am not holding my breath as I am hoping that the styling will have improved a little. It is one of those things throughout my downward slide that bugs the hell out of me, the design or should I say lack of design of disability equipment, esthetically pleasing it isn’t. If the stool wasn’t one of the most useful items they have given me it would have exited my life long ago. I would advise anyone who has Fibro or MS to get one, in fact I would advise anyone to get one even if healthy, they are brilliant. As the name says they are for perching on not sitting which is a great position for cooking from, it allows you to reach, stretch, chop and stir without the restriction of being totally sat does and as you haven’t full sat down, there isn’t the problem of getting up, you just lean forward and the rest of you follows. My ideal image elegant chrome with a cream cushion will turn I am sure into stumpy rubber feet white paint and plasticy looking brown seat. Anyone want to put a bet on it?