A few thoughts and facts

One of the things that many people don’t know or haven’t heard about MS is that it compromises your immune system, I mention this today not because I am ill, but because it came up an a TV program I was watching yesterday. The most common individual thing that people with MS die from is actually an infection that our bodies cannot fight off. This is also the major reason why many say MS doesn’t kill, the killer is the infection, somehow blinkered to the fact that the MS allowed the infection to kill, when it wouldn’t have in someone without MS. In the past when I have spoken to people about my illness, they are always surprised by the huge range of different area’s of the illness. Everyone seems to know one or two things but usually not really understanding the impact, but poor immunity to everything, is something none have ever known about. To be fair, it is usually not a great danger until the MS has progressed into the later stages, but like many other things, it is there just waiting to happen. I expect that is probably one of the things that being housebound actually protects us from to a degree, not being out and about means I no longer pass by or pickup all the bugs I would have in the past. I know Adam is constantly worried about this, we have spoken about it several time, as with him working in a hospital he is exposed constantly to a million illnesses daily. I know that he fear picking up something and bringing it home with him, the fact he often smell strongly, almost as though he has bathed in the hand gel they now use on the wards, proves it. I appreciate his diligence, but in truth you can’t live in a germ free bubble, what arrives arrives and then is the time to worry about it.

It has often surprised me though just how little people seem to know about illness of any sort. Beyond a cold or the flue, that most actually seem to think will actually kill them, the average person seems to pay no attention to what is happening to the population of the world, when it comes to health. Long before I had MS, I had a growing awareness of illnesses, form that cold right through to the nasty killers. I don’t actually remember ever going out of my way to learn, I just picked things up as I went through life. Maybe I listened more closely as I already knew there was something wrong with me, although I didn’t have a name for it, but I was aware I had a knowledge way beyond others I talked to in daily life. I don’t think it was until my early 30’s that I started to read about anything connected to health, as that was the point I gave up on doctors and decided I had to find out what was wrong with me. I can’t help feeling that it is probably time that we started to teach our children not about health but about illness. Not with a mind on them all becoming doctors, but for them to become aware of what may be wrong with that person in a wheelchair, or on crutches, or stuttering and holding up the supermarket queue. I have seen and been the cause of some of the worst sides of the humans species, a few lessons at school, sometime spent in a wheelchair unable to get out, event designed to give youngsters a true understand of the disabled, well I can’t think of anyone who wouldn’t benefit. We are now in a world with a growing population of the elderly, with age comes growing disability, a growing population who require some understanding in their everyday lives. Within those lessons could be included some knowledge of illness in general, if not in our schools, well it could and probably should be part of training for anyone in the service industries.

The more time you have in your life to sit and think, the more you see just how easily the world could be changed into being a better place. Reaching the age of 20 with certificates all over your walls is great, but somehow we are now producing generation after generation, who have no empathy for those around them and no sight beyond their bank balances. We used to grow up with our elderly relative around us, we spent time with them seeing them age, become frail and we learned how to help. These days too few ever see their relatives as families are split up all over the place, granny no longer lives in your house, she’s shut in a care home where the young only go to when dragged by the ear. Even once there, their heads are buried in their mobile games and phones. At a time when reality shows we need more caring individuals, we are nurturing a generation who doesn’t know how to interact, or to care for a stranger different from themselves, but who needs their empathy more than they know. Sorry, rant over.

There still seems to be no great change in the over powering weakness that I have. That is a week now, so I guess it is now unlikely to go away, I have no documented instances, but it seems to me that it works that way, one week, then there for ever. One of the things that I have notice more than any is actually one of the smallest things, my fingers are so sore these days and it is there when I wake up until I go to sleep again. Just as they have lost their strength they have also learned how to ache all the time. I am still in pain from my left arm pit across the front of my chest to the center from when I fell. I did sort of crash into the floor around that point, but I had only dropped the length of my arm, but I know when standing if I lean forward I am thrown into pain. Adam has decided that I have a cracked rib, I think I have some pulled muscles. Last night for the first time since it happened that I was woke several times due to the pain, in that area, I am just hoping that this is one of those injuries that hits it’s highest point over a couple of days and then vanishes. So here is to a vanishing, any time today that it likes, please.