My whole day is going to be centered round drink a horrid gunk that will flush my guts out, 1 liter to drink this afternoon at a pace of one glass every 15 mins, of course they don’t say what size glass, I would prefer to get it over and done with so I will use my normal “Slim Jim”. Then this evening I have another 1 liter to drink, the actual times are not set but what I want to do is head of the earliest version of evening I can as I once again last night was in bed by 9pm and I won’t be able to sleep this afternoon, well I doubt I will anyway. On the food side today there is a total of Zero solid food, just clear sugar free liquids. Eight years ago the system was different, you were allowed to eat and drink until 6pm and then had 2 liters to drink at one time, well it took me 5hrs and I through the last half liter went down the drain as I just couldn’t drink any more of it. I am going to try mixing it with tonic water and lemon juice, I just hope it is easier to drink.
There is no doubt that science has brought us forward when it comes to diagnosing things without surgery but I have yet to find any medicine or medical compound that has anywhere near palatable. I know that they are there for a different reason, but it would honestly make a world of a difference to someone like me who seems to spend most of my life having to drink there offerings. I used to believe that they actually did it on purpose to put you off being ill, well it didn’t work!
I am so glad that I actually turned the central heating on on Tuesday night as the temperature is now well below 0 and it to stay that way through out the week. Last year when ever the temperature fell this low I didn’t open any of the curtains on those days and it is the same to day, every curtain in the house is closed to maintain every tiny bit of warmth I can. One of the things about being disabled is that I find it hard to generate heat myself, so if I am sat in a cold room I feel it. I actually last winter bought myself a few things to help and I am so glad I did now. To look at me right now I would present a rather laughable picture, I have a nightdress, pressure socks, two dressing gowns and I am inside a sleeping bag, funny but I am warm. I also bought to heat pads that I can put in the microwave which then generate heat for a couple of hours, not in use yet but possibly soon. For the evenings when I am on the settee, I also bought one of those “snuggles blankets”, they have arms so that you can wrap yourself up well, last winter our electric usage came down a little, but it has to come down a lot more! Looks don’t matter, warmth and money saving does, I know many people who wouldn’t be happy about having to go to these lengths to stay warm but choice just doesn’t come into it any longer.
All these, are the lengths that being disabled in the 21st century involve, it seems so wrong that anyone with enough problems from their health has to worry so much just about what should be a simple thing, staying warm, and I know there are many more out there who are finding it far harder. Adam is working, not for the greatest income, but he does bring home money towards our bills, there are many out there who don’t have anything other than what the state gives them, I truly feel sorry for them.