A few weeks ago I wrote about a test I was trying with a new cushion and pressure socks to see if I could get some relief from the pains I have in my legs, I hadn’t forgotten to update you I just wanted to give it a bit more time to see what the results really were. The pressure socks do seem to have had a positive result and I am finding the pain in my lower legs has greatly improved, not gone but a lot better than they were. I am wearing them from when I get up in the morning right through to my bed time at night and there has been two positives. The first is that I have no edema in my lower legs at all! For the first time in not just months, more like years, I have my skinny bony feet back, there is no swelling and that in itself means no pain from tight stretched skin. The area on the top of my foot that I was slowly scratching the skin off is healing up properly, the difference is well worth the small amount the socks cost me. I knew the problems was probably coming from sitting all the time, just as you do on a long haul flight, OK I didn’t have the pressure changes but fluid was pooling, it doesn’t any longer. The pain issue is slightly different there are still spells of intense pain that gets worse as the day goes on, and it has had no effect at all on the spasms or any of the pain I know comes from my MS and Fibro, but even a small improvement is really welcome and there has been some, on top of just that caused by the fluid issue. I STRONGLY RECOMMEND if you have similar problems buy those socks now.
The cushion is a different result, it seems to help some of the time but I have to keep changing positions and add or take away other cushions from under it. I would now describe myself as being like the “Princess and the Pea”, I am a that “Princess” and it is a constant battle trying to move the pea around, as you know you can’t get rid of it. It is totally impossible for me to now sit for more than maybe 10 mins without having to change position slightly and try again until it gets to painful to remain in that position and I am then off again. What the cushion is really doing is it is supplying more options. I now also take it with me when I move over to the settee having it with me all the time, rather than just up here at my desk, has helped a little. Sitting is the simplest position that we all expect to be always able to do, finding yourself unable to do so with any degree of comfort and without the option of standing isn’t only difficult but it is also frustrating. I honestly don’t know when last I have managed to stay in the same position for more than just a few minutes and I know that that isn’t helping with the other big problem with MS, fatigue.
I have dug out a letter that I received on the 26th June regards an OT coming to the house well we are into September and I haven’t heard anything since. I have tried this morning to phone a few times but as it always seems to be with any NHS phone line it is constantly engaged. The OT was meant to be coming to sort out seating that would make life bearable, the letter said that I am not a priority and it could take time for an appointment to be available but I didn’t expect to be still waiting over 2 months later, which of course is on top of the two months of passing me from person to person before passing me to the OT service.
Adams mother has arranged for me to see a lady she knows through her Yoga class, she specialists in massage and is properly trained in medical massage not the essential oil type you get in a spa. She apparently works with other patients with MS and others forms of chronic illness, so I will be calling her soon to see when she is available to come and see me and find out what she thinks she might be able to do. To those who have been reading my blog for a while will know, I’m not big on alternative therapies so for me to accept this kind of really shows how much pain I am in and how desperate I am now to get relief from it. I am trying to keep an open mind and be prepared to try at the very least and be astounded at the very best.